Day 27 WC 1731 TWC 64297

Once again writing this at the edge of exhaustion before bed. I had a fun evening with my friends in the write/chat room. One woman was in a rut, so we each spent 5 minutes writing the other person's book. It was terribly enlightening about what we know and what we don't. I'm too tired today for a grand word count: spent hours with the new neurologist, and a little time with the family. the kids are seeing friends tonight. The news from the neurologist may be good. He thinks the episodes are being driven by a complex tick disorder, which is genetic. I hold off the movements as long as I can, then fall apart. However, that ability to hold off the movement is what defines a tick and I learned today they can be large and complicated, not just simple movements. He still does not know whether or not the deeper attacks are actually seizures, but he changed my meds this week to help suppress the ticks (I find this hard to believe, but he showed me the medical definition and I have to say it fits the way my episodes began, and begin now) in the hopes that the spells themselves will subside if I am less tired from holding off these complex ticks. I'll see him next week to see if there was any success. What makes sense to me is that if I have the underlying mitochondrial disorder and the cells are not metabolizing properly, then they would be, and feel as though they are, exhausted just by getting through the day. If you add to this a movement disorder it makes sense that my brain just wears out. He thinks the right meds and the neurofeedback can help me a lot. Having been through so many approaches and theories I am wary, but I do like this man and would like to believe him. We'll see how his approach works. In the meantime, I am trying to use this emotional medical week as grist for the mill. And having said that, I am off to bed.